ARDS Resources


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Walking You Through The ICU (podcast) – What really happens to patients during medically-induced comas when patients are intubated on ventilators? How can loved ones of patients in the Intensive Care Unit help patients survive and thrive? What can families do to advocate for their loved ones to have the best and evidence-based care in the ICU?

Walking You Through the ICU Blog (podcast episode transcription)

This podcast will give loved ones the knowledge to support patients and ICU teams in preventing ICU delirium, atrophy, and lethal complications in the ICU. Families will have powerful tools of advocacy to help support humane sedation and mobility practices for their loved ones

Trapped In My Body As An ARDS Survivor » – podcast by Walking Home from the ICU

American Thoracic Society – ARDS


Society of Critical Care Medicine (THRIVE)

National Institutes of Health (NIH)

ARDS Network

National Organizations for Rare Disorders

Pulmonary Function Tests

Pulmonary Rehabilitation

Treatment of ARDS With Prone Positioning

What is ECMO?

Nitric Oxide

CDC – Hospital Acquired Infections

Sepsis Alliance

Humanizing ICU

Pediatric Acute Respiratory Distress Syndrome (ARDS)

Pediatric Acute Respiratory Distress Syndrome (ARDS)

The Current State of Pediatric Acute Respiratory Distress Syndrome

The Current State of Pediatric Acute Respiratory Distress Syndrome

Pediatric acute respiratory distress syndrome: progress over the past decade

Overview of Perinatal Respiratory Disorders

End-of-life care in the pediatric intensive care unit after the forgoing of life-sustaining treatment

End-of-life care in the pediatric intensive care unit: attitudes and practices of pediatric critical care physicians and nurses

Pediatric Acute Lung Injury and Sepsis Investigators

Caring for Your Child on Oxygen

Children’s psychological responses after critical illness and exposure to invasive technology

Health and Wellness

COVID-19 Information and Resources

Coping with Grief and Loss

Grief: Coping with the loss of your loved one

What Loved Ones Should Know About the End of Life

Post-Traumatic Stress Disorder (PTSD)

Novel Risk Factors for Posttraumatic Stress Disorder Symptoms in Family Members of Acute Respiratory Distress Syndrome Survivors

Anxiety, Depression and Post Traumatic Stress Disorder after critical illness: a UK-wide prospective cohort study

Acute respiratory distress syndrome: how do patients fare after the intensive care unit?

 Financial Assistance and Support

Begin Again Foundation Begin Again Foundation – Help us create new beginnings for others! Marc and Audrey’s experiences gave us a personal view on what it’s like to get a new beginning. Families overcome with hardships inspire our ideas, and often times, our solutions. Together, let’s give families a #NewLEISHonLife.

Immune Recovery Foundation™ (IRF), a national 501(c)(3) nonprofit organization, is dedicated to helping low and moderate-income individuals, particularly those of color, who are hard hit financially and affected by serious autoimmune, chronic, and life-altering diseases.  IRF provides co-pay assistance to qualified individuals for prescription, treatment, premiums, and/or medical travel costs.

Social Media

ARDS Foundation Facebook Page

ARDS Foundation Twitter Page

ARDS Foundation LinkedIn page

ARDS Foundation Instagram

ARDS Foundation’s President, Eileen Rubin’s Twitter page

ARDS Foundation’s President, Eileen Rubin’s, LinkedIn page


Every Deep Down Drawn Breath by Dr. Wes Ely

Families in the Intensive Care Unit – Giora Netzer, MD

Samuel Brown

Through the Valley of Shadows, Samual Brown, MD

Articles, Eileen Rubin

Eileen Rubin, JD

From Independent Attorney to Critically Ill Patient

Eileen Rubin, JD, of ARDS Foundation Approved for $50,000 Funding Award by PCORI

Her Own Experience with ARDS Led this Attorney to Co-Found the ARDS Foundation

Meet Eileen Rubin of ARDS Foundation in Northbrook

A scary illness you’ve probably never heard of, June 2001

American Thoracic Society

Hold Your Breath for ARDS

Why more hospitals are inviting families into the ICU, February 2017

ICU patients’ outcomes improve when hospital staff also pay attention to families of the sick, February, 2017

Grassroots Group Promotes ARDS Education, February 2007

Coping with Grief

11 Books to Help Children Cope with the Loss of a Parent

10 Children’s Books To Help Kids Deal With Losing a Loved One

Six Books for Grieving Teenagers

Top 5 Grief Books for Children Ages 13-17

When Bad things Happen to Good People by Harold S. Kushner
Rabbi Harold S. Kushner wrote, “When Bad Things Happen to Good People” as a personal tribute to those who are searching for answers, and for truth, and some good in the world when their world has just shattered.

Love Never Dies by Sandy Goodman


Humanizing the ICU Patient: A Qualitative Exploration of Behaviors Experienced by Patients, Caregivers, and ICU Staff

If people knew…Rules would be different, February 2019

Humanizing ICU, February 2019

FIFTY YEARS OF RESEARCH IN ARDS , The Epidemiology of Acute Respiratory Distress Syndrome,
A 50th Birthday Review, April 1, 2017

An Official American Thoracic Society/European Society of Intensive Care Medicine/Society of Critical Care Medicine Clinical Practice Guideline: Mechanical Ventilation in Adult Patients with Acute Respiratory Distress Syndrome, May 1, 2017

Imaging in Acute Respiratory Distress Syndrome, June 28, 2016

Chest radiography versus lung ultrasound for identification of acute respiratory distress syndrome: a retrospective observational study, 2018

ECMO for ARDS in the modern era, October 4, 2018

Use of ECMO in ARDS: does the EOLIA trial really help? (2018)

An Official American Thoracic Society/European Society of Intensive Care Medicine/Society of Critical Care Medicine Clinical Practice Guideline: Mechanical Ventilation in Adult Patients with Acute Respiratory Distress Syndrome, May, 2017

Use of inhaled nitric oxide in patients with acute respiratory failure with low blood oxygen does not improve survival, June 2016

Pediatric Acute Respiratory Distress Syndrome, November 23, 2016

Recovery and outcomes after the acute respiratory distress syndrome (ARDS) in patients and their family caregivers, 2016

Exploring the Scope of Post–Intensive Care Syndrome Therapy and Care: Engagement of Non–Critical Care Providers and Survivors in a Second Stakeholders Meeting

Health Perceptions and Behavior Changes in Survivors of the Acute Respiratory Distress Syndrome, February, 2013

Balancing digital information-sharing and patient privacy when engaging families in the intensive care unit, September, 2016

DISCLAIMER: Please note that the ARDS Foundation is not responsible for and has no control over the contents of or information provided in the sites linked to or accessible from this site. Your linking to any other site is at your own risk, and ARDS Foundation accepts no liability for the contents, accuracy or currency of sites that link to this site or to which we link from this site.

ARDS Foundation does not endorse any linked site or have any association with any operators of such sites, and is not responsible for any transmission received from any linked site. ARDS Foundation assumes no responsibility, and shall not be liable, for any damage to or any viral infection of your computer equipment or software on account of your access, use of or browsing in this or any other site.

By | 2022-04-26T17:51:18-05:00 October 26th, 2014|Brochures, Medical Websites & Articles, Patient and Family Resources|Comments Off on ARDS Resources