Brochures
ARDS Foundation Cognitive Problems »
ARDS Foundation Mental Health Brochure »
Websites
Walking You Through The ICU (podcast) – What really happens to patients during medically-induced comas when patients are intubated on ventilators? How can loved ones of patients in the Intensive Care Unit help patients survive and thrive? What can families do to advocate for their loved ones to have the best and evidence-based care in the ICU?
Walking You Through the ICU Blog (podcast episode transcription)
This podcast will give loved ones the knowledge to support patients and ICU teams in preventing ICU delirium, atrophy, and lethal complications in the ICU. Families will have powerful tools of advocacy to help support humane sedation and mobility practices for their loved ones
Trapped In My Body As An ARDS Survivor » – podcast by Walking Home from the ICU
American Thoracic Society – ARDS
Society of Critical Care Medicine (THRIVE)
National Institutes of Health (NIH)
National Organizations for Rare Disorders
Treatment of ARDS With Prone Positioning
CDC – Hospital Acquired Infections
Pediatric Acute Respiratory Distress Syndrome (ARDS)
Pediatric Acute Respiratory Distress Syndrome (ARDS)
The Current State of Pediatric Acute Respiratory Distress Syndrome
The Current State of Pediatric Acute Respiratory Distress Syndrome
Pediatric acute respiratory distress syndrome: progress over the past decade
Overview of Perinatal Respiratory Disorders
Pediatric Acute Lung Injury and Sepsis Investigators
Caring for Your Child on Oxygen
Children’s psychological responses after critical illness and exposure to invasive technology
Health and Wellness
COVID-19 Information and Resources
Grief: Coping with the loss of your loved one
What Loved Ones Should Know About the End of Life
Post-Traumatic Stress Disorder (PTSD)
Acute respiratory distress syndrome: how do patients fare after the intensive care unit?
Financial Assistance and Support
Begin Again Foundation – Help us create new beginnings for others! Marc and Audrey’s experiences gave us a personal view on what it’s like to get a new beginning. Families overcome with hardships inspire our ideas, and often times, our solutions. Together, let’s give families a #NewLEISHonLife.
Immune Recovery Foundation™ (IRF), a national 501(c)(3) nonprofit organization, is dedicated to helping low and moderate-income individuals, particularly those of color, who are hard hit financially and affected by serious autoimmune, chronic, and life-altering diseases. IRF provides co-pay assistance to qualified individuals for prescription, treatment, premiums, and/or medical travel costs.
Social Media
ARDS Foundation’s President, Eileen Rubin’s Twitter page
ARDS Foundation’s President, Eileen Rubin’s, LinkedIn page
Books
Every Deep Down Drawn Breath by Dr. Wes Ely
Families in the Intensive Care Unit – Giora Netzer, MD
Samuel Brown
Through the Valley of Shadows, Samual Brown, MD
Articles, Eileen Rubin
Eileen Rubin, JD
From Independent Attorney to Critically Ill Patient
Eileen Rubin, JD, of ARDS Foundation Approved for $50,000 Funding Award by PCORI
Her Own Experience with ARDS Led this Attorney to Co-Found the ARDS Foundation
Meet Eileen Rubin of ARDS Foundation in Northbrook
A scary illness you’ve probably never heard of, June 2001
Why more hospitals are inviting families into the ICU, February 2017
ICU patients’ outcomes improve when hospital staff also pay attention to families of the sick, February, 2017
Grassroots Group Promotes ARDS Education, February 2007
Coping with Grief
11 Books to Help Children Cope with the Loss of a Parent
10 Children’s Books To Help Kids Deal With Losing a Loved One
Six Books for Grieving Teenagers
Top 5 Grief Books for Children Ages 13-17
When Bad things Happen to Good People by Harold S. Kushner
Rabbi Harold S. Kushner wrote, “When Bad Things Happen to Good People” as a personal tribute to those who are searching for answers, and for truth, and some good in the world when their world has just shattered.
Love Never Dies by Sandy Goodman
Articles
If people knew…Rules would be different, February 2019
Humanizing ICU, February 2019
FIFTY YEARS OF RESEARCH IN ARDS , The Epidemiology of Acute Respiratory Distress Syndrome,
A 50th Birthday Review, April 1, 2017
Imaging in Acute Respiratory Distress Syndrome, June 28, 2016
ECMO for ARDS in the modern era, October 4, 2018
Use of ECMO in ARDS: does the EOLIA trial really help? (2018)
Pediatric Acute Respiratory Distress Syndrome, November 23, 2016
Health Perceptions and Behavior Changes in Survivors of the Acute Respiratory Distress Syndrome, February, 2013
Balancing digital information-sharing and patient privacy when engaging families in the intensive care unit, September, 2016
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