Here are some links to resources and information about ARDS. If you know of a resource that should be listed here. Please use our Contact Form to let us know! Use this search engine and Help support The ARDS Foundation.
Information About ARDS
American Lung Association Call Center – The call center staff is composed of Registered Nurses and Respiratory Therapist. All of their staff has extensive experience in the treatment of ARDS. Their toll free number 1-800-548-8252.
Information provided by the American Lung Association is not a substitute for medical advice or treatment and the ALA recommends consultation with your doctor or your health care professional.
American Association for Respiratory Care – The AARC is a professional membership association for respiratory care professionals and allied health specialists interested in cardiopulmonary care.
Inhaled Nitric Oxide Gas Therapy and ARDS
American Lung Association –
Nitric Oxide – New Treatment? Inhaled Nitric Oxide for ARDS Following Pulmonary Resection
National Jewish Medical and Research Center – #1 Respiratory Hospital
National Institutes of Health – This is the official web site of the National Institutes of Health (NIH). The National Institutes of Health is one of the world’s foremost medical research centers. An agency of the U.S. Department of Health and Human Services, the NIH is the Federal focal point for health research. NIH is the steward of biomedical and behavioral research for the Nation. Its mission is science in pursuit of fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to extend healthy life and reduce the burdens of illness and disability.
A Family Guide to Adult ECMO – ECMO stands for ExtraCorporeal Membrane Oxygenation. It is the use of an artificial heart-lung machine for patients whose heart or lungs are failing despite all other treatments.
RT Article: – Newest Concepts in Managing ARDS
RT Article:- Ventilation and ARDS
Acute Respiratory Distress Syndrome – A Historical Perspective
General ARDS Related Links
The Merck Manual of Diagnosis and Therapy – Technical information about the disease
EMedicine.com – offers pictures of the condition
Doctor’s Guide – Researchers propose new treatment for ARDS
ICU-USA -Information about medical conditions, treatments, test, equipment, durgs, medical terms and many other aspects of the ICU.
Specific ARDS Links
ARDS and Pregnancy
Implications for the Pregnant Patient – Article by Lucy A. Campbell and Robert A.Klocke Department of Medicine, State University of New York at Buffalo, Buffalo, New York
ECMO-Adult & Children
ARDS Equipment and Items
RehabMart Discount Medical Equipment – online discount medical equipment and supply company that is owned and operated by occupational and physical therapists
Children Respiratory Information
Pediatrics Respiratory Distress Syndrome – Although originally described in adults, acute respiratory distress syndrome (ARDS) occurs in children of all ages as well
IntensiveCare – Supporting Evidence-Based Practice in Critical Care Medicine
Pulmonary Rehabilitation Sites
Pulmonary Rehabilitation for COPD – Rehabilitation therapy basically consists of exercise, ventilatory therapy, ventilatory muscle training, and respiratory muscle resting. Nutritional and psychological support round out the program.
Pulmonary Exchange – provides dignified care to patients in their homes.
General Post ARDS Issues
Pulmonary Function Testing – gives a great description of the pulmonary function test and what it all means, and every survivor has a PFT.
Association of Academic Physiatrists – these are doctors who specialize in physical medicine and rehabilitation.
Post Traumatic Stress Disorder Alliance – Learn more about Post Traumatic Stress Disorder which is something almost all survivors experience after ARDS.
Facts for Health–Post Traumatic Stress Disorder-Who gets ptsd?
ARDS Exploratory Study Results – Discusses the relationship between cognitive performance and employment and health status in long-term survivors of the acute respiratory distress syndrome.
News – Patients with Acute Respiratory Distress Syndrome at Increased Risk of Posttraumatic Stress Disorder
Specific Post ARDS Issues
Immune Deficiency Foundation – A National non-profit health organization dedicated to improving the diagnosis and treatment of primary immune deficiency diseases through research and education
Free Prescription Medicine Available to those who Qualify – a volunteer program providing assistance to uninsured financially challenged individuals.
No Air to Go – Learn about Idiopathic or Interstitial Pulmonary Fibrosis and Sarcoidosis from educational information and patients sharing experience of chronic lung disease. Pulmonary glossary written for support group use, forum and the No Air Cafe chatroom
Important Info for people who have disabilities as a result of ARDS – Americans with Disabilities Act
Time and Energy Management – Pacing yourself – how to make things easier, doing things around the house
Breathin’ Easy – A guide for travelers with pulmonary disease
Oxygen Supplies – complete line of respiratory care products
APRIA HEALTHCARE Welcome – Home Healthcare-A better Way
Vent Weaning -The site is intended to provide information and a discussion forum for families of ventilated patients, many of who suffer from ARDS.
Other Lung Links
LAM – is a different lung related illness that affects only women of childbearing age. The LAM Foundation is a 501(c)3 non-profit organization devoted to finding a cure for Lymphangioleiomyomatosis (LAM) by providing support, education, information and funding scientific research
National Emphysema/COPD Assoc
Understanding Sepsis – A Booklet from the ISF
Hope and Support Links
With Every Breath I Praise Him
The Miraculous Healing of Jack E. Yonts II
Pastor Jack Yonts recounts his and his family’s faith as he struggled with and overcame Acute Respiratory Distress Syndrome. Currently, Pastor Yonts is the Senior Pastor of thriving church in Menasha Wisconsin, as well as the presbyter over 19 churches in north eastern Wisconsin. Married 19 years and the father of two beautiful girls, he has much to live for, and its a miracle he is alive. In 1999, he was hospitalized with pneumonia and within hours was in the battle for his life against ARDS that lasted for 97 days in ICU. Jack’s book is just another chance for him to share with others words of encouragement and faith. Cost for ‘With Every Breath I Praise Him’ is $10.00
For more information, contact Pastor Jack Yonts at 1445 Midway Rd Menasha, WI 54952, Phone:920 734-4444 or by email at: firstname.lastname@example.org
Health & Wellness
Coma Recovery Association – Coma Recovery Association, Inc. offers mutual aid and support, support group meetings, general information, referrals and advocacy.
Med Help International – Providing patient information via our online medical center. Interactive question and answer forums staffed by online doctors, extensive library of articles on all diseases and health conditions. (heart, neurology, child behavior, dermatology, mental health, gastroenterology, addiction, etc.)
Other Links of Interest
The Rubins – A website for senior citizens and those who care about them.
Constipation and Colon Cleansing Resource Center-provides information on constipation and its treatments. Contains over forty articles on contstipation and colon cleansing.
DiseasesConditions A guide lists thousands of diseases and conditions sites offering Health resource – nutrition, cancer, mental health, allergies, depression, anxiety, diabetes and more.
Partnership for Cures is a public 501c3 that rushes new and better treatment options to patients in two years or less by repurposing existing drugs and other therapies. Repurposing research is a fast, inexpensive and safe way to find new uses in new diseases for existing therapies to make an immediate impact forpatients while they still have the time and health to derive a significant benefit. Physicians have the option to use these new treatments as soon as the research is completed and the results are published. To find out more, visit us at www.4cures.org
The Compassionate Friends – for parents whose children have died
GriefNet: Support Group, Memorial Garden, and Resources is an Internet community of persons dealing with grief, death, and major loss.
Healing after Loss
Prescription Drug Assistance
Self Help Center
Health Care Proxy (Mass)
US Legal Forms-Health Care Forms
All States allow a person to make decisions concerning their health care. You can search for health care directives, Power of Attorney for Health Care or Living Will, for your State and purchase the appropriate forms from this site.
Inpatient Rehabilitation Facilities
Social Security Online
American Thoracic Society
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