Category Page: Brochures

Prone Therapy

Studies have shown that placing patients in the prone position helps:

  • Improve oxygenation quickly within the first hour of pronation for over 70% of patients
  • Sustain an improvement in oxygenation
  • Provide lung protective ventilation by decreasing inflammation, injury, barotrauma and ventilator-associated lung injury
  • Reduce ventilation time
  • Reduce ICU length of stay
  • Facilitate drainage of pulmonary secretions4
  • Eliminate compression of the lungs by the heart

Simplified Proning The RotoProne® Therapy System automates the proning process:

  • Automated proning may help address caregiver risk management concerns
  • Minimal staff is required to prone patient
  • Touch-screen controls automatically control therapy system
  • Separate hand control allows caregiver to monitor patient lines and tubes during rotation
  • Tube management system helps secure patient lines during rotation

To find out more about the RotoProne Therapy system, click below:
http://www.rotoprone.com/

The RotoProne Therapy is currently available in 51 US cities and the surrounding geographies (approximately 35 miles around the city). Included is an attachment (RotoProne Service Centers) that shows the cities. KCI is hoping to add more cities this year.

Q. Can families rent the RotoProne bed?
A. The Hospital rents RotoProne. Patients/Families cannot directly rent the product, however, they can ask for the product.

ARTICLE #1: Ventilatory Management of Acute Respiratory Distress Syndrome: A Consensus of Two.

Marini JJ, Gattinoni L. Ventilatory management of acute respiratory distress syndrome: a consensus of two. Crit Care Med. 2004;32(1):250-255.

This article provides a practical guideline for ventilator management of ARDS with a special emphasis on preventing ventilator induced lung injury. On page 253, the authors provide guidance about when to prone patients with ARDS. “We place in the prone position those requiring >10 cm H20 PEEP at FiO2 of ?0.6 to maintain oxygen saturation at ?90%, unless there is a clear contraindication or the patient is rapidly improving.”

ARTICLE #2: Prone Ventilation in Trauma or Surgical Patients with Acute Lung Injury and Adult Respiratory Distress Syndrome: is it Beneficial?

Davis JW, Lemaster DM, Moore EC, et al. Prone ventilation in trauma or surgical patients with acute lung injury and adult respiratory distress syndrome: is it beneficial? J Trauma. 2007;62:1201-1206.

This article compares the effectiveness of supine versus prone kinetic therapy in mechanically ventilated trauma and surgical patients with acute lung injury (ALI) and adult respiratory distress syndrome (ARDS). The conclusions of this article show that patients with ALI/ARDS who received prone kinetic therapy had greater improvement in oxygenation (P/F ratio increase), a reduction in the number of ventilator days, lower mortality, and less pulmonary-related mortality than did supine positioned patients.

ARTICLE #3: Prone Positioning Improving Oxygenation in Patients with ARDS.
GREAT ARTICLE FOR PATIENTS AND NURSES

Kennison M, Yost III W. Prone positioning Improving oxygenation in patients with ARDS. Nursing2009CriticalCare. 2009; 4 (3): 42-46.

This article helps the reader to learn about how prone therapy can help turn ARDS outcomes around.

ARDS and Sepsis

Sepsis-associated ARDS carries the highest mortality rates and also strikes over one-third of those who have ARDS. Therefore, ARDS Foundation felt the subject was important enough to publish a brochure addressing the relationship between ARDS and sepsis.

You can use our contact form to request a brochure by mail.

ARDS Foundation appreciates the time and effort Dr. David Hagar and Dr. Roy Brower from Johns Hopkins Medical Center, Baltimore, Maryland, contributed in creating the Sepsis & ARDS brochure.

Long-Term Acute Care Facilities (Inpatient Rehabiliation)

The ARDS Foundation has compiled a list of long-term acute care facilities located throughout the United States. This list is by no means complete.

The ARDS Foundation is not recommending any of these facilities and as always, urges family members or friends to ask the questions that are suggested, among others, in our Inpatient Rehab Question list, or refer to our many resources listed at the bottom of this list for more information about inpatient rehab facilities. Best of all, ask current or former patients and family members their thoughts about the facilities that you are considering.

Finally, if you know of a facility that is not on our list, please use our Contact Form and we will add that facility to our list.

U.S. Nursing Home Information and Registry

Assisted Living Directory

A website for seniors and those that care about them

A list of all hospitals in the US by state

Acute Long Term Hospital Association

Physician’s List for ARDS Patients and their Families

Dear ARDS Community:

Since going online with the ARDS Foundation website, we have received many emails and phone calls from families who ask for names of physicians throughout the country or in Canada, either for consultation purposes, for transfers, or for post ARDS care.

After discussing this recurrent issue with physicians from the ARDS Network, we felt that there must be a better way to guide families and patients, to physicians who have training and expertise in ARDS.

As such, in working with those in the medical community, we have begun to create a list of “Who’s-Who in ARDS” throughout the USA, Canada, and the world, who have a sufficient knowledge of ARDS.

Although the physicians listed here have been reviewed by advisory board, the ARDS Foundation urges everyone to fully investigate any physician that they choose to contact regarding any medical care or advice. Further, the ARDS Foundation does not endorse any of the physicians listed.

Finally, please keep in mind that just because a physician’s name appears here, that does not mean that he or she is necessarily in a position to take on additional patients at any particular time. Please respect that these physicians may also be researchers.

Thank you,

Eileen Rubin

 

CLICK HERE: WHO’S WHO DOCLIST

 

 

 

 

 

 

 

Talking to children about a parent or loved one who is ill with ARDS

Talking to children about a parent or loved one who is ill with ARDS

Resources Especially for Kids and their Parents

kidskarekrds

ARDS Stories-Kids
Kids Who Kare Make A Difference

ARDSKidsBrochure

Download the Children and ARDS Brochure pdf file (62kb)

A Pamphlet for Families, Friends, and Parents.

Talking to children about a parent or loved one who is ill with ARDS

Adults often worry about what children should be told regarding a parent or loved one who is struggling with ARDS….

  • What can be said to them?
  • How much information should be told?
  • How can their suffering be relieved and how can they be reassured

Given the changes that occur, if the children are not given information, they may imagine other reasons for the changes in their parents which may be more harmful than what is actually the cause for the changes.

For instance, a child who does not understand the syndrome may believe a parent who is ill has gotten so sick due to a fight that occurred between his or her parents, or that it was because the child said or did something right before the parent got ill.

When excluded from facts and information of the syndrome, children feel isolated and may have trouble trusting the adults around them.

Who should give children information about their parent and the syndrome?

It can be the other parent, grandparent, or other trusted relative, as well as medical professionals who can explain the syndrome in age related terminology for the children. But it needs to be an adult who can take the time and have the patience to listen to the child, discuss the situation, and allow communication to flow between the two.

Should children come to the hospital?

Younger children need brief, concrete explanations. Older children may have lots of questions. Follow the child’s lead. If they want to touch their family member, help them to hold the hand or to give a kiss on the cheek. If they seem overwhelmed, take it slow and make the visit brief.

Talk to the child after the visit and answer any questions they may have. Children like to feel like they are able to help in some way. It is often helpful for children to make “get well” cards for their family member and to tape these cards in places that the child can see on the next visit.

When a child does not want to go to the hospital to visit a parent, please respect that child’s wishes and give the child other options. One can tape record a message to a parent and bring the tape recorded message, along with a photo, to the hospital. A video message is also another option. The child can write a letter, draw a picture, call on the phone if a phone is available in the ICU. As an ARDS patient gets better, and more of the machines are removed, it might be easier and better for a child to visit a parent at the hospital.

Resources Especially for Kids and their Parents

Children and ARDS
Talking to children about a parent or loved one who is ill with ARDS
Resources Especially for Kids and their Parents

kidskarekrds

ARDS Stories-Kids
Kids Who Kare Make A Difference

ARDSKidsBrochure

Download the Children and ARDS Brochure pdf file (62kb)
A Pamphlet for Families, Friends, and Parents.

Resources Especially for Kids and their Parents

Pediatrics, Respiratory Distress Syndrome

IntensiveCare.com

News – Survival in Acute Respiratory Distress Syndrome Patients May Improve With Continuous Haemodiafiltration

Pediatric Acute Lung Injury: Prospective Evaluation of Risk Factors Associated with Mortality

Respiratory Disorders in Neonates, Infants, and Young Children

End-of-life care in the pediatric intensive care unit after the forgoing of life-sustaining treatment

End-of-life care in the pediatric intensive care unit: attitudes and practices of pediatric critical care physicians and nurses

Extracorporeal Membrane Oxygenation for Cardiac Support in Children

Extracorporeal Membrane Oxygenation (ECMO)

PedsCCM: The Pediatric Critical Care Website: The multidisciplinary and practical resource for Pediatric Critical Care on the Internet Peer reviewed original content integrated with links to selected web resources

ECMO:Saving lives at Children’s for over 20 years

Effect of Prone Positioning on Clinical Outcomes in Children With Acute Lung Injury

Prone Position is Best for Acute Respiratory Failure

Effect of prone positioning on clinical outcomes in children with acute lung injury: a randomized controlled trial

Caring for your Child on Oxygen

Nitric Oxide Administration for Acute Respiratory Distress Syndrome

Surfactant treatment for acute respiratory distress syndrome

Partial liquid ventilation in the therapy of pediatric acute …

Links below are drawings of ICU equipment to show children prior to a visit to the hospital

Links for books for Children about Death and Dying

Books about a serious illness:

Special children – about.com

Links for Children who experience the loss of a loved one:

Death & Dying

Death & Dying links

Bereavement in childhood

Children’s psychological responses after critical illness and exposure to invasive technology

Characteristics of a child’s critical illness and parents’ reactions: preliminary report of a pilot study

Books for Children who experience the loss of a loved one:

Books

Books for Adults who Lose a Child (or children who lose a loved one):

When Bad things Happen to Good People by Harold S. Kushner

Where is G-d when you have just been told that your child has an incurable disease? or that your child is suddenly gone without giving you a chance to say good-bye?

Rabbi Harold S. Kushner wrote “When Bad Things Happen to Good People” as a personal tribute to those who are searching for answers, and for truth, and some good in the world when their world has just shattered.

The Rabbi’s son was diagnosed with progeria, “rapid aging.” As a rabbi, he spent much of his time consoling others who faced tragedy but now he was faced with whether he could practice his own preachings of wisdom, courage and faith. Rabbi Kushner does not ignore the human pain, but rather offers a response to how such bad things could happen and how to handle them while dealing with one’s grief.

This book may help people also when struggling with one’s own faith during this difficult time and also can help children to deal with the struggles of losing a parent suddenly or after a lengthy illness such as ARDS.

Love Never Dies by Sandy Goodman