Here are some links to resources and information about ARDS. If you know of a resource that should be listed here. Please use our Contact Form to let us know! Use this search engine and Help support The ARDS Foundation.
American Lung Association Call Center – The call center staff is composed of Registered Nurses and Respiratory Therapist. All of their staff has extensive experience in the treatment of ARDS. Their toll free number 1-800-548-8252.
Information provided by the American Lung Association is not a substitute for medical advice or treatment and the ALA recommends consultation with your doctor or your health care professional.
American Association for Respiratory Care – The AARC is a professional membership association for respiratory care professionals and allied health specialists interested in cardiopulmonary care.
Inhaled Nitric Oxide Gas Therapy and ARDS
American Lung Association –
Nitric Oxide – New Treatment? Inhaled Nitric Oxide for ARDS Following Pulmonary Resection
National Jewish Medical and Research Center – #1 Respiratory Hospital
National Institutes of Health – This is the official web site of the National Institutes of Health (NIH). The National Institutes of Health is one of the world’s foremost medical research centers. An agency of the U.S. Department of Health and Human Services, the NIH is the Federal focal point for health research. NIH is the steward of biomedical and behavioral research for the Nation. Its mission is science in pursuit of fundamental knowledge about the nature and behavior of living systems and the application of that knowledge to extend healthy life and reduce the burdens of illness and disability.
A Family Guide to Adult ECMO – ECMO stands for ExtraCorporeal Membrane Oxygenation. It is the use of an artificial heart-lung machine for patients whose heart or lungs are failing despite all other treatments.
RT Article: – Newest Concepts in Managing ARDS
RT Article:- Ventilation and ARDS
Acute Respiratory Distress Syndrome – A Historical Perspective
The Merck Manual of Diagnosis and Therapy – Technical information about the disease
EMedicine.com – offers pictures of the condition
Doctor’s Guide – Researchers propose new treatment for ARDS
ICU-USA -Information about medical conditions, treatments, test, equipment, durgs, medical terms and many other aspects of the ICU.
Implications for the Pregnant Patient – Article by Lucy A. Campbell and Robert A.Klocke Department of Medicine, State University of New York at Buffalo, Buffalo, New York
RehabMart Discount Medical Equipment – online discount medical equipment and supply company that is owned and operated by occupational and physical therapists
Pediatrics Respiratory Distress Syndrome – Although originally described in adults, acute respiratory distress syndrome (ARDS) occurs in children of all ages as well
IntensiveCare – Supporting Evidence-Based Practice in Critical Care Medicine
Pulmonary Rehabilitation for COPD – Rehabilitation therapy basically consists of exercise, ventilatory therapy, ventilatory muscle training, and respiratory muscle resting. Nutritional and psychological support round out the program.
Pulmonary Exchange – provides dignified care to patients in their homes.
Pulmonary Function Testing – gives a great description of the pulmonary function test and what it all means, and every survivor has a PFT.
Association of Academic Physiatrists – these are doctors who specialize in physical medicine and rehabilitation.
Post Traumatic Stress Disorder Alliance – Learn more about Post Traumatic Stress Disorder which is something almost all survivors experience after ARDS.
Facts for Health–Post Traumatic Stress Disorder-Who gets ptsd?
ARDS Exploratory Study Results – Discusses the relationship between cognitive performance and employment and health status in long-term survivors of the acute respiratory distress syndrome.
News – Patients with Acute Respiratory Distress Syndrome at Increased Risk of Posttraumatic Stress Disorder
Immune Deficiency Foundation – A National non-profit health organization dedicated to improving the diagnosis and treatment of primary immune deficiency diseases through research and education
Free Prescription Medicine Available to those who Qualify – a volunteer program providing assistance to uninsured financially challenged individuals.
No Air to Go – Learn about Idiopathic or Interstitial Pulmonary Fibrosis and Sarcoidosis from educational information and patients sharing experience of chronic lung disease. Pulmonary glossary written for support group use, forum and the No Air Cafe chatroom
Important Info for people who have disabilities as a result of ARDS – Americans with Disabilities Act
Time and Energy Management – Pacing yourself – how to make things easier, doing things around the house
Breathin’ Easy – A guide for travelers with pulmonary disease
Oxygen Supplies – complete line of respiratory care products
APRIA HEALTHCARE Welcome – Home Healthcare-A better Way
Vent Weaning -The site is intended to provide information and a discussion forum for families of ventilated patients, many of who suffer from ARDS.
LAM – is a different lung related illness that affects only women of childbearing age. The LAM Foundation is a 501(c)3 non-profit organization devoted to finding a cure for Lymphangioleiomyomatosis (LAM) by providing support, education, information and funding scientific research
National Emphysema/COPD Assoc
Understanding Sepsis – A Booklet from the ISF
With Every Breath I Praise Him
Pastor Jack Yonts recounts his and his family’s faith as he struggled with and overcame Acute Respiratory Distress Syndrome. Currently, Pastor Yonts is the Senior Pastor of thriving church in Menasha Wisconsin, as well as the presbyter over 19 churches in north eastern Wisconsin. Married 19 years and the father of two beautiful girls, he has much to live for, and its a miracle he is alive. In 1999, he was hospitalized with pneumonia and within hours was in the battle for his life against ARDS that lasted for 97 days in ICU. Jack’s book is just another chance for him to share with others words of encouragement and faith. Cost for ‘With Every Breath I Praise Him’ is $10.00
For more information, contact Pastor Jack Yonts at 1445 Midway Rd Menasha, WI 54952, Phone:920 734-4444 or by email at: firstname.lastname@example.org
Coma Recovery Association – Coma Recovery Association, Inc. offers mutual aid and support, support group meetings, general information, referrals and advocacy.
Med Help International – Providing patient information via our online medical center. Interactive question and answer forums staffed by online doctors, extensive library of articles on all diseases and health conditions. (heart, neurology, child behavior, dermatology, mental health, gastroenterology, addiction, etc.)
The Rubins – A website for senior citizens and those who care about them.
Constipation and Colon Cleansing Resource Center-provides information on constipation and its treatments. Contains over forty articles on contstipation and colon cleansing.
DiseasesConditions A guide lists thousands of diseases and conditions sites offering Health resource – nutrition, cancer, mental health, allergies, depression, anxiety, diabetes and more.
Partnership for Cures is a public 501c3 that rushes new and better treatment options to patients in two years or less by repurposing existing drugs and other therapies. Repurposing research is a fast, inexpensive and safe way to find new uses in new diseases for existing therapies to make an immediate impact forpatients while they still have the time and health to derive a significant benefit. Physicians have the option to use these new treatments as soon as the research is completed and the results are published. To find out more, visit us at www.4cures.org
The Compassionate Friends – for parents whose children have died
GriefNet: Support Group, Memorial Garden, and Resources is an Internet community of persons dealing with grief, death, and major loss.
Healing after Loss
Health Care Proxy (Mass)
US Legal Forms-Health Care Forms
All States allow a person to make decisions concerning their health care. You can search for health care directives, Power of Attorney for Health Care or Living Will, for your State and purchase the appropriate forms from this site.
Inpatient Rehabilitation Facilities
Social Security Online
DISCLAIMER: Please note that the ARDS Foundation is not responsible for and has no control over the contents of or information provided in the sites linked to or accessible from this site. Your linking to any other site is at your own risk, and ARDS Foundation accepts no liability for the contents, accuracy or currency of sites that link to this site or to which we link from this site.
ARDS Foundation does not endorse any linked site or have any association with any operators of such sites, and is not responsible for any transmission received from any linked site. ARDS Foundation assumes no responsibility, and shall not be liable, for any damage to or any viral infection of your computer equipment or software on account of your access, use of or browsing in this or any other site.
Vitamin D deficiency has been linked to more than a few diseases, and the latest is acute respiratory distress syndrome (ARDS).
Deficiency was widespread say researchers after looking at more than 100 patients with, or at risk of getting, ARDS. And using mouse models, they also concluded that vitamin D deficiency appears to contribute to the development of ARDS.
They published their findings on April 22 in Thorax.
This writing is intended to briefly introduce ARDS patients, their families, and significant others, with the properties of nitric oxide and the clinical implications associated with the use of this gas. Nitric oxide (NO) should not be confused with nitrous oxide (N2O), the mild anesthetic often used by dental professionals that is more commonly known as “laughing gas.” As a matter of fact, nitric oxide was known as a common environmental pollutant and contaminant during the manufacturing process of nitrous oxide. NO is normally manufactured from the reaction of sulfur dioxide with nitric acids. Nitric oxide is a component of smog that can be measured in urban area air at 10 to 100 parts per billion (ppb), is naturally produced in the body in the upper and lower airway at 100 to 1000 ppb, and is present in cigarette smoke at 400 to 1000 parts per million (ppm). Clinical research found that the concentration of exhaled NO is increased during exercise and in patient’s with asthma.
Inhaled NO is a relatively new United States Food and Drug Administration (FDA) investigational drug and numerous facilities are involved in clinical trials utilizing this gas. Until approved by the FDA, its use is limited to those facilities that have gone through the application process for drug evaluation and research and have been granted permission (known asan Investigational New Drug [IND] number) to conduct such studies utilizing NO. In addition, an informed consent procedure must be obtained from each patient or legal representative prior to the administration of NO.
To find out more about the RotoProne Therapy system, click below:
The RotoProne Therapy is currently available in 51 US cities and the surrounding geographies (approximately 35 miles around the city). Included is an attachment (RotoProne Service Centers) that shows the cities. KCI is hoping to add more cities this year.
Q. Can families rent the RotoProne bed?
A. The Hospital rents RotoProne. Patients/Families cannot directly rent the product, however, they can ask for the product.
ARTICLE #1: Ventilatory Management of Acute Respiratory Distress Syndrome: A Consensus of Two.
Marini JJ, Gattinoni L. Ventilatory management of acute respiratory distress syndrome: a consensus of two. Crit Care Med. 2004;32(1):250-255.
This article provides a practical guideline for ventilator management of ARDS with a special emphasis on preventing ventilator induced lung injury. On page 253, the authors provide guidance about when to prone patients with ARDS. “We place in the prone position those requiring >10 cm H20 PEEP at FiO2 of ?0.6 to maintain oxygen saturation at ?90%, unless there is a clear contraindication or the patient is rapidly improving.”
ARTICLE #2: Prone Ventilation in Trauma or Surgical Patients with Acute Lung Injury and Adult Respiratory Distress Syndrome: is it Beneficial?
Davis JW, Lemaster DM, Moore EC, et al. Prone ventilation in trauma or surgical patients with acute lung injury and adult respiratory distress syndrome: is it beneficial? J Trauma. 2007;62:1201-1206.
This article compares the effectiveness of supine versus prone kinetic therapy in mechanically ventilated trauma and surgical patients with acute lung injury (ALI) and adult respiratory distress syndrome (ARDS). The conclusions of this article show that patients with ALI/ARDS who received prone kinetic therapy had greater improvement in oxygenation (P/F ratio increase), a reduction in the number of ventilator days, lower mortality, and less pulmonary-related mortality than did supine positioned patients.
ARTICLE #3: Prone Positioning Improving Oxygenation in Patients with ARDS.
GREAT ARTICLE FOR PATIENTS AND NURSES
Kennison M, Yost III W. Prone positioning Improving oxygenation in patients with ARDS. Nursing2009CriticalCare. 2009; 4 (3): 42-46.
This article helps the reader to learn about how prone therapy can help turn ARDS outcomes around.
Sepsis-associated ARDS carries the highest mortality rates and also strikes over one-third of those who have ARDS. Therefore, ARDS Foundation felt the subject was important enough to publish a brochure addressing the relationship between ARDS and sepsis.
You can use our contact form to request a brochure by mail.
ARDS Foundation appreciates the time and effort Dr. David Hagar and Dr. Roy Brower from Johns Hopkins Medical Center, Baltimore, Maryland, contributed in creating the Sepsis & ARDS brochure.
Because the ARDS Foundation realizes that people have a difficult time conceptualizing how quickly a patient become so critically ill when acute respiratory distress syndrome strikes, we felt it was important to illustrate this fact. To simply state that it is between twenty-four to forty-eight hours never seems to properly impress upon people just how quickly ARDS moves.
It was for this reason that we wanted to show with x-rays, how quickly ARDS can overtake the lungs sometimes within days, sometimes hours.
After all, a picture is worth a thousand words, isn’t it? These x-rays (radiographs) demonstrate the rapidity of ARDS and the need to start ventilatory support.
Findings: An examination demonstrated a large right upper lobe infiltrate. Mass lesion suspicious for pneumonia or malignancy. The right lower lobe and left lung remain clear. Heart size and pulmonary vasculature are within normal limits. Patient was admitted to the hospital.
There is still dense infiltrate involving the right upper lobe particularly the anterior and posterior segments with some sparing of the apicla segment. In the interval, however, there has been development of a parenchymal infiltrate at the right base most likely involving right middle and lower loves with evidence of bilateral pleural effusions.
There is a worsening right lung opacity consistent with right upper lobe mass with increasing effusions and basilar infiltrates. The left lung showed new multifocal infiltrates and increasing effusion as well.
An endotracheal tube is present with the tip well above the carina. A nasogastic tube is seen with the tip in the stomach.
The ARDS Foundation especially thanks Dr. Willard Fry and the Marilyn Waitkus from the Multimedia Department at Evanston Northwestern Healthcare for their assistance to this project.