Resources Especially for Kids and their Parents

Children and ARDS
Talking to children about a parent or loved one who is ill with ARDS
Resources Especially for Kids and their Parents


ARDS Stories-Kids
Kids Who Kare Make A Difference


Download the Children and ARDS Brochure pdf file (62kb)
A Pamphlet for Families, Friends, and Parents.

Resources Especially for Kids and their Parents

Pediatrics, Respiratory Distress Syndrome

News – Survival in Acute Respiratory Distress Syndrome Patients May Improve With Continuous Haemodiafiltration

Pediatric Acute Lung Injury: Prospective Evaluation of Risk Factors Associated with Mortality

Respiratory Disorders in Neonates, Infants, and Young Children

End-of-life care in the pediatric intensive care unit after the forgoing of life-sustaining treatment

End-of-life care in the pediatric intensive care unit: attitudes and practices of pediatric critical care physicians and nurses

Extracorporeal Membrane Oxygenation for Cardiac Support in Children

Extracorporeal Membrane Oxygenation (ECMO)

PedsCCM: The Pediatric Critical Care Website: The multidisciplinary and practical resource for Pediatric Critical Care on the Internet Peer reviewed original content integrated with links to selected web resources

ECMO:Saving lives at Children’s for over 20 years

Effect of Prone Positioning on Clinical Outcomes in Children With Acute Lung Injury

Prone Position is Best for Acute Respiratory Failure

Effect of prone positioning on clinical outcomes in children with acute lung injury: a randomized controlled trial

Caring for your Child on Oxygen

Nitric Oxide Administration for Acute Respiratory Distress Syndrome

Surfactant treatment for acute respiratory distress syndrome

Partial liquid ventilation in the therapy of pediatric acute …

Links below are drawings of ICU equipment to show children prior to a visit to the hospital

Links for books for Children about Death and Dying

Books about a serious illness:

Special children –

Links for Children who experience the loss of a loved one:

Death & Dying

Death & Dying links

Bereavement in childhood

Children’s psychological responses after critical illness and exposure to invasive technology

Characteristics of a child’s critical illness and parents’ reactions: preliminary report of a pilot study

Books for Children who experience the loss of a loved one:


Books for Adults who Lose a Child (or children who lose a loved one):

When Bad things Happen to Good People by Harold S. Kushner

Where is G-d when you have just been told that your child has an incurable disease? or that your child is suddenly gone without giving you a chance to say good-bye?

Rabbi Harold S. Kushner wrote “When Bad Things Happen to Good People” as a personal tribute to those who are searching for answers, and for truth, and some good in the world when their world has just shattered.

The Rabbi’s son was diagnosed with progeria, “rapid aging.” As a rabbi, he spent much of his time consoling others who faced tragedy but now he was faced with whether he could practice his own preachings of wisdom, courage and faith. Rabbi Kushner does not ignore the human pain, but rather offers a response to how such bad things could happen and how to handle them while dealing with one’s grief.

This book may help people also when struggling with one’s own faith during this difficult time and also can help children to deal with the struggles of losing a parent suddenly or after a lengthy illness such as ARDS.

Love Never Dies by Sandy Goodman

By | 2017-01-30T11:27:43-06:00 August 26th, 2013|Brochures, Patient and Family Resources|Comments Off on Resources Especially for Kids and their Parents